Lesson 24 of 25
Sector & Emerging State Rules: Health, AI & Insurance
5 min read · CIPP/US
The frontier the new blueprint adds: consumer-health-data laws beyond HIPAA like Washington's MHMDA, profiling and automated-decision opt-outs, state AI governance, and the NAIC AI and Insurance Data Security model guidance.
Consumer health data beyond HIPAA
- HIPAA gaps: apps, wearables, websites collect health data
- Washington's My Health My Data Act fills the gap
- Broad "consumer health data" definition + consent
- Private right of action raises the stakes
The newest state developments are exactly what the updated blueprint added, so this lecture is high-yield. Start with consumer health data. Remember from Domain two that HIPAA only covers data held by covered entities, leaving a huge gap: health-related data collected by apps, wearables, and websites is largely outside HIPAA.
States are closing that gap, and the leading example is Washington's My Health My Data Act. It defines consumer health data broadly, well beyond HIPAA's P-H-I, requires consent to collect or share it, bans certain geofencing around health facilities, and, notably, carries a private right of action. So when a scenario involves a period-tracking app or a health website that isn't a HIPAA covered entity, the answer is increasingly a state consumer-health-data law, not HIPAA.
Profiling and automated decisions
- State laws give opt-out of certain profiling
- Profiling with legal/significant effects is the trigger
- Right to know logic / meaningful information (emerging)
- Echoes GDPR Article 22 concepts in a U.S. form
A second emerging theme is automated decision-making and profiling. The state comprehensive laws already give consumers the right to opt out of profiling that produces legal or similarly significant effects, decisions about credit, housing, employment, insurance, made or substantially aided by automated processing. Newer rules and regulations are pushing further toward transparency about the logic involved and a right to meaningful information or even to contest a decision, concepts that echo the GDPR's restrictions on solely automated decisions.
The exam wants you to recognize that the U.S. is developing its own profiling-and-automated-decision rules at the state level, so when a scenario describes an algorithm making a consequential decision about a consumer, think state profiling opt-outs and the transparency duties forming around them.
AI governance and the NAIC guidance
- States enacting AI/automated-decision governance rules
- Colorado's AI Act targets high-risk algorithmic discrimination
- NAIC AI Systems (AIS) governance guidance for insurers
- Bias testing, governance, and accountability themes
Artificial intelligence governance is the frontier, and the blueprint specifically calls out the N-A-I-C guidance. At the state level, broad AI laws are appearing, Colorado's AI Act, for instance, targets algorithmic discrimination in high-risk systems and imposes duties on developers and deployers to guard against bias. In the insurance sector, the National Association of Insurance Commissioners, the N-A-I-C, issued guidance on the use of artificial-intelligence systems, sometimes called A-I-S governance, expecting insurers to maintain governance frameworks, test for unfair discrimination, and stay accountable for AI-driven decisions affecting consumers.
You don't need to memorize every provision, but recognize the pattern the exam tests: AI governance is moving from voluntary principles toward enforceable state rules and sector guidance built around fairness, transparency, and accountability.
The NAIC Insurance Data Security Model Law
- Model law adopted by many states for insurers
- Requires a written information-security program
- Risk assessment, governance, incident response, breach notice
- Sector-specific cousin of the GLBA Safeguards Rule
One more named source to know is the N-A-I-C Insurance Data Security Model Law, which many states have adopted to govern data security in the insurance industry. It requires licensees to maintain a comprehensive written information-security program based on a risk assessment, with board or management oversight, controls over service providers, an incident-response plan, and notification of cybersecurity events to the insurance commissioner. If that sounds familiar, it should, it's the insurance sector's cousin of the GLBA Safeguards Rule and the HIPAA Security Rule, the same risk-based, written-program, oversight-and-notify structure you've seen repeatedly.
The exam likes that you can recognize this recurring security architecture across sectors rather than treating each as brand new.
Keeping the moving target in view
- New state laws and amendments arrive constantly
- Effective dates roll; the active-state list keeps growing
- Watch for a possible federal comprehensive law
- Practice the pattern, not just a memorized state list
A word about studying a moving target, because Domain five changes faster than any other part of the exam. New state comprehensive laws are enacted regularly, existing ones get amended, and effective dates roll out on staggered timelines, so the precise list of active states and the fine details shift from year to year. The IAPP updates the Body of Knowledge to keep pace, which is exactly why this domain was reweighted upward.
There's also a wildcard: Congress periodically debates a federal comprehensive privacy law, and if one passes it could preempt or reshape the state regime entirely. The exam-smart response is not to memorize a brittle list of states and dates that may be stale by exam day, but to master the pattern, the California model, the Virginia-style template, the consent tiers, the exemptions, the universal opt-out, so that whatever specific law a question names, you can reason about it from the structure. Learn the architecture, and the individual buildings become readable.
Exam reasoning and Domain V wrap-up
- Health data outside HIPAA → state consumer-health laws
- Algorithmic decisions → profiling opt-outs + emerging AI rules
- Insurance → NAIC model law + AIS governance guidance
- Domain V arc: breach/biometrics → CA model → template → rights → emerging
Let's set the reasoning and wrap Domain five. If health data sits outside HIPAA, an app, a wearable, a website, reach for a state consumer-health-data law like Washington's, not HIPAA. If an algorithm makes a consequential decision, think the state profiling opt-out and the emerging AI-governance rules.
If it's insurance, recall the N-A-I-C model security law and the A-I-S governance guidance. Now the domain arc, which holds the whole heavy block together: you started with the universal foundations, breach notification and biometrics like BIPA, then California as the founding comprehensive model, then the Virginia-style template the other states share, then the mechanics of rights and consent, and finally these emerging health, profiling, AI, and insurance rules. That's the most-weighted territory on the exam, and you've now mapped it.
Now go test yourself, then we finish with exam-day strategy.
Sources
- Washington My Health My Data Act (consumer health data)
- state automated-decision/profiling and AI provisions in comprehensive privacy laws
- NAIC Insurance Data Security Model Law and NAIC AI/AIS governance guidance
- Colorado AI Act direction
- IAPP CIPP/US Body of Knowledge, Domain V.B (new content: state health-data, AI governance, and NAIC guidance)
Test your knowledge
A few CIPP/US questions on this material — pick an answer to see the explanation.
Q1. A departing employee takes confidential customer data from the company network to a personal device without authorization. The Computer Fraud and Abuse Act (CFAA) may apply if:
Q2. An HR manager who is also a nurse reviews an employee's health records in the company health plan system out of curiosity, not for any plan administration purpose. This most likely violates:
Q3. Social media reports purchased from a third-party vendor and used for employment decisions may be regulated as 'consumer reports' under the FCRA if they:
Q4. Under the CCPA/CPRA, 'sharing' of personal information differs from 'selling' in that sharing specifically captures: